Dena Piquette-Garcia
Jun 2026
Not only is Ginny Arroyo hilarious but she also has an incredible ability to recognize opportunities that others might completely miss. When we first met and discussed Ehlers-Danlos syndrome (EDS), Ginny immediately recognized the value of preparing her caregiving team to better understand and support this growing patient population. While many organizations may not yet realize the need, increasing awareness and diagnosis rates make specialized knowledge more important than ever. Most people would have overlooked the opportunity entirely. Ginny saw it immediately. She understood that families living with EDS and related conditions often face unique challenges that can impact daily living, mobility, safety, chronic pain management, dysautonomia, fatigue, and overall quality of life. She recognized that educating caregivers before the need became obvious would position her team to provide a higher level of support and better outcomes for the families they serve. Rather than waiting for someone else to address the gap, Ginny took action. Together, we developed and launched the first-ever Ehlers-Danlos syndrome training program specifically designed for professional in-home caregivers. Through this groundbreaking initiative, the first 16 caregivers in history were trained and certified to better understand and support the unique needs of individuals living with EDS in the home care setting. What impressed me most was Ginny’s vision, enthusiasm, and willingness to innovate. She didn’t wait for a trend. She saw an emerging need and stepped forward to help meet it. Ginny is energetic, compassionate, forward-thinking, and deeply committed to excellence in care. I am grateful for our partnership and proud of what we accomplished together. The impact of this pioneering program will extend far beyond those first 16 caregivers, helping to shape the future of home care for individuals living with EDS and related conditions.
